“Berned” by Bernie Sanders

(email from Bernie Sanders)…. said that chronic pain sufferers should seek yoga or guided meditation to ease our suffering.

shiksappeal speaks

Last fall, a fellow disability activist and close friend of mine introduced me to Bernie Sanders. From the moment I first heard his platform, I was hooked. After living abroad several years in a country with socialized medicine and heavily subsidized education, I was thrilled an American politician was proposing these policies here. Due to my own disabilities, the cost of healthcare has become exorbitant and becoming chronically ill forced me to leave my career in public service litigation to collect meager social security benefits. So, Bernie’s message resonated strongly with my own personal experience of being in the 99%.

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I was so moved by his message that I began volunteering for the campaign, be it through phonebanking, texting or simply bringing his message to everyone I knew. I believed so strongly in the change he could effect that I even donated more money than I could otherwise afford to…

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When We HAVE to Wear A Mask to Breathe and Function

Seriously "Sensitive" to Pollution

When breathing the air hurts…

When we have to filter and “purify” the air just to breathe…

What options do we have?

many masksSome of the many (mostly nuisance level particulate) masks available in Asia, where people aren’t afraid to be creative or silly, despite the seriously sad need.

Having an invisible disability is difficult, especially when many of the adverse effects are delayed and we have to deal with them in isolation.  Some people feel  self conscious about wearing a mask, especially if we can’t find a “pretty” one that we are able to use, despite how they can reduce adverse effects. If there’s any good that comes from wearing one (in addition to protecting our health a bit) wearing a mask when we have an invisible disability helps make us visible.

The type of mask we benefit most from will depend on our “sensitivities” and circumstances. Masks…

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An open letter to healthy people from a former healthy person

BeingCharis


Dear healthy people,

Let me tell you about becoming a “sickbody.” I have Ankylosing Spondylitis. Right, just don’t even try to pronounce that. We’ll stick with calling it A.S., yeah? Really all you need to know about it for this blog post is that it’s a chronic autoinflammatory disease. I’ll share a link at the end for you to read more about it. (Here’s a distracting picture of me to help you along)

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